Alex Speaking at Jessie’s Heart
On February 14, 2019 this year. Alex Schroeter, who was diagnosed with Long QT Syndrome in 2016 had the pleasure of being a speaker at the Jessie’s Heart Leadership Conference. I, his father was proud standing on the stage with Alex and his mother as he...
Beyond the Heart – A Family’s Journey with Congenital Heart Disease
Moments after you discover your child is born with a congenital heart defect, come the waves of emotions, instinctual responses, medical information and terminology, and subsequent confusion. Though your child is alive, fear, grief, and sadness crash into a family...
Why parents should know about Long QT Syndrome (LQTS)
Long QT Syndrome is a genetic disorder that is inherited and can cause heart rhythm irregularities and sudden cardiac death(SCD). Kids with the disorder have a longer than normal QT interval. In other words, their hearts takes longer to recharge between heartbeats. ...
Jessie’s Heart Newsletter 9-29-17
Meet the families you help through your generous donations. The Jessie's Heart mission is to provide support for children with heart disease that reduces emotional, physical and financial stress for the family. Your Donations Making a Difference ...